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Melissa's
Story
Hello,
my name is Steven and my wife's name is Stella, we would like
to share with you a story. This story is one of love, beauty,
horror, true life nightmares, tragedy, sadness, tears, shock.
there is one thing that kept it all together and got everybody
through to today and that’s the Beautiful LOVE and support
within our family and as time went on we found that there are
a number of people out there that really do care and offer the
support that we all need in these and similar times.
Melissa has a brother Matthew and sister Emily who spent allot
of time with Melissa and had to unfortunately go through this
horror at a young age where they struggled to make sense of it
all and had trouble adjusting to their sisters new outlook on
life.
Melissa also has her grandparents Bob and Barbie (pumpaa and
mummaa) they were the irreplaceable support through this time
and fought the fights by our side.
Melissa
was born on the 12th of May 1994, two weeks early, she was induced
because her Mums hips were causing problems and apart from this
and that the birth dragged out over 4 days, the pregnancy went
well.
When Melissa was born, the doctor gave her a quick wipe over,
wrapped her in a blanket and then gave me my new daughter. Melissa's
eyes were wide open and looking at me, she was a perfect healthy
baby. Melissa was a contented baby and slept through the night
and day just waking for feeds and playtime. Every thing was going
wonderfully for us, we were all very happy. We did notice that
Melissa had some unique birthmarks but we were told that they
might not be a permanent mark as they may fade away as time goes
on.
Melissa
was 9 months old when she had a temperature and started to have
a seizure. We thought this was a Febrile Convulsion as Matthew
and Emily also had febrile convulsions when they were young,
so we put her in the bath and started sponging her down, after
about 5 minutes there was no change so I rang the doctor, The
doctor arrived, (5 mins after we called) Melissa was not responding
to the bathing so the doctor called an ambulance and she was
taken to the local hospital. They controlled the seizure and
Melissa recovered well.
We
then made an appointment to see a Pediatrician as advised by
the emergency department, and at this appointment, he noted Melissa’s
head size was slightly larger than normal and also white lesions
on her back, hip and on top of her legs . The doctor told us
there were a few possibilities so we were referred to a larger
Hospital to see a pediatric Neurologist and a Genetics Specialist.
After Catscans, EEG and Blood tests, we returned to the Pediatrician
for the results. In less than 1 minute our lives changed from
perfect to total devastation through the shock and horror that
our perfect little daughter Melissa was a victim to the ugly
side of nature. Our Perfect little Angel had a Disorder called
Tuberous Sclerosis with no cure and no predictable future. We
asked every question we could think of and read every thing we
could find on T.S. We prepared for the worst but never in our
wildest dreams did we expect things to turn out the way they
did. Melissa was Diagnosed with Mild T.S. She has 2 possibly
3 tubers in her Brain said not to be causing any severe problems,
1 in her heart causing no problems and reducing and one in her
kidney.
Melissa
continued to grow and learn very well. She had approx 8 seizures
each time with amazing recovery. At least 50% of her seizures
were life threatening. The times we watched our little Princess
on the Emergency table all a motley grey and blue skin colour
with doctors saying things like "Melissa is gravely ill
and we are doing the best we can to save her". After having
these seizures she would bounce back very well and advance so
much in her learning, it was amazing. Things like before the
seizure using a bottle after the seizure not wanting a bottle,
the same with the dummy (pacifier) after the seizure Melissa
asked if we could through it in the bin. after the second to
last seizure Melissa decided that she didn't want nappies anymore
and she wanted to go to the toilet, she was not happy having
to wear nappies at certain times and to bed. These changes took
place from the time we got home from the hospital not a week
or month later, but the day she got home from the hospital, it
was really a strange thing to see and became something to watch,
what will Melissa do next time. If we only knew.
At
the age of 2 years old Melissa could say the Alphabet, count
to 16 and knew the words to 10 songs , which were all adult songs,
from Deni Hines, T.L.C, many country music songs and in addition
children's songs (Bananas in Pyjamas her Favourite ) Melissa
had Microphone handling ability and worked well to camera or
audiences with facial expressions and hand gestures that suited
the songs, a real talent. Melissa was fully toilet trained as
well. Her speech was very good, she knew all body parts and loved
singing and dancing, she was well above her age mentally.
It
had been 7 months since Melissa had seizured and we were so hopeful
for her future even the doctor said her future was looking good.
She was 2 and a half and sleeping in the lounge with us while
we watched TV, as we watched Melissa every minute that we were
awake, which was about 19 to 20 hours a day since her first seizure.
Melissa woke up about 11pm on the 4th of November 1996 we will
never forget. She was shivering, so I took her to our room to
put her in bed and asked if she wanted her quilt on to keep nice
and warm but she said no she wanted to go to the doctor, she
said "Doctor make Melissa better" We then dressed her
and put her in the car and Stella (her mum) said "see you
later and I love you". Stella had to stay home with the
other children until Grandpa arrived to take over. Melissa said
her last spoken words to her mum and said "I LOVE YOU MUMMY
and I AM FIGHTING MUMMY" Melissa talked to me on the way
to hospital and on the hospital bed in Emergency she was singing
a song to the nurse and 10 to 15 minutes later in the middle
of her song Melissa's eyes dilated and her limbs went stiff she
was having a seizure.
The doctors controlled the seizure as always in the past. Due
to the amount of drugs it took to control the seizure she had
partial lung collapse so they transferred her to a larger better
equipped hospital to Intensive Care. Melissa kept a good colour
all through and had no shortage of oxygen to her brain. She was
put on a breathing machine and next day had a Catscan which showed
every thing was ok no Brain swelling.
In
the ICU was a registrar doctor, For some reason the doctors decided
that Melissa’s Tegratol doses must be canceled so that’s
what they did stopped it cold. We fought that decision and told
them it goes against everything we have been told and that we
have read in our research of T.S. they said it is ok and they
are stopping it, no more will be given. Someone had then written
CANCELED across her medication records.
The next day Melissa had a couple of breakthrough seizures and
the registrar told us that they were not seizures but like an
aftershock from an earthquake, I suggested the cancellation of
the Tegretol may be the reason as Melissa was on a high dose
and then stopped cold, he said no it is just her brain settling
down after the initial seizure. He then told us Melissa was to
be transferred to a ward, I could not believe this as it was
so wrong to cancel one of her medications, see breakthrough seizure
activity the next day and then send her to a ward. he started
to get the nurses packing up her stuff ready for the move so
I found the doctor in charge of ICU and told him what was happening
and my thoughts on what was happening and he said Melissa could
stay in ICU. Three more times the registrar packed her up and
each time he was stopped. Sadly the head of ICU went home about
4.30-5pm that day, before he left he promised me that Melissa
was staying the night but if no improvement this time tomorrow
they would re-asses her stay in ICU and within about 45 minutes
of this doctor going home Melissa was moved down to the ward.
We kicked up a reasonable amount of disapproval and tried our
best to stop the move but with no avail, the best we got was
a promise that Melissa would be transferred immediately back
to ICU as soon as there was any further seizure activity. I thought
well that’s the best we can do that will have to do, I knew
more seizures were coming so we would be back before midnight,
I was sure.
Melissa
was then taken in to the lift where the bed was jolted going
in to the lift by the difference in the floor of the building
and the slight difference in level in the lift, at this time
Melissa winged and kicked her legs like a tantrum (kicking one
leg at a time rapidly) and settled in the lift. When we got to
the ward the nurses were doing their change over so we had to
wait in the corridor until they were ready, there it was the
next seizure, I then got one of the nurses and told them that
the registrar in ICU said she would be transferred straight back
if she had a seizure, the nurse said we will get her settled
here and then see what they want to do. Melissa was put in a
room with one nurse on 4 children, this means that Melissa would
have more than 75% of time without a nurse’s supervision
as there is so much time taken up with them going out of the
room to get this and do other things. Luckily the nurse that
we got used to be an ICU nurse at a different hospital and she
sat down with us to find out about Melissa. I asked her so what
were you told about Melissa in your nurses handover so you can
care for her, she said she was told that Melissa had a seizure,
and THATS IT, the nurse wasn't happy to know that Melissa hadn't
yet recovered and I told her about what had happened since we
got to the hospital and she went and got permission to care for
Melissa one on one. About this time Melissa opened her eyes and
looked at her mum and said mummy and then went back to sleep.
The first thing the nurse did was make a seizure chart to note
any activity. I also told her that Melissa was supposed to be
transferred straight back to ICU if she had a seizure and at
this stage she had 2 in the ward, after checking at the nurses
station she told us there is nothing they could do until the
morning when the medical team come around.
I was not happy with that and didn't believe there was nothing
that could be done but as the nurse knew what she was doing and
was keeping a seizure chart I thought we could wait.
There was about 9 seizures that night.
The next day was a stressing day waiting for the doctors and
at this time Stella and myself went home to get our first few
hours of sleep since it started and Melissa’s grandparents
were sitting with her, we never left her for a minute. just after
we got home Melissa’s grandma rang to let us know that they
were still waiting for the doctors but someone else had come
around and just wanted to confirm some information that I can't
remember at this time,
when the doctors came around they said they would get an eeg
to see if it is seizure activity. later that afternoon the doctors,
this time one of the leading pediatric neurologists came around
and said it looks like there is seizure activity but they are
not sure if it is or not,, in the medical notes it stated seizure
activity present on the eeg report, anyway he ordered 5mg of
a drug that apparently was used allot for jetlag. well it was
time for me to get a bit uptight and voice some concerns as 5
mg of this drug wasn't going to do anything for her and at the
time this neuro was with Melissa she was showing signs of status
epilepticus where she would have a seizure when ever there was
a considerable noise or someone bumped her bed, he even tested
this and saw it to be happening yet still left her to continue
without further treatment or going back to ICU.
Through this day Melissa had around 20 seizures all increasing
in frequency and severity up to the point of status epilepticus
when she was still left and it was only a couple of hours later
being in status all this time that it turned in to a continuous
seizure. When this one didn't stop after about 10 minutes I alerted
them that it was now continuous
and they casually said ok we will get a doctor up from ICU to
asses her, an hour later a doctor came and said yes and then
got another doctor to check her, well the fourth doctor was from
ICU and said they would organise someone to take her up there,
I then told them if they don't take her now I will and after
a mildly warm discussion the doctor from ICU and a couple of
nurses and of coarse Stella and I took her straight up there.
We did discuss on the way the reason why 4 hours ago she wasn't
getting some treatment to stop the seizure and I got an earful
of doctor hospital jibba jabba.
It then turned in to a debate over their ides on gradual treatment
and my idea on severe intervention on this seizure that had been
going for 4 HOURS, they said she had alot of drugs in her system
and had to do it gradual, I said take a blood test and work out
the maximum you can give her, he then said that he couldn't do
that, what was I to say.
We
then had 5 days to sit by her side watching her seizure and as
it went on it appeared to be continuing but it appeared to be
weaker in intensity, I think this was a sign of the extreme damage
that had occurred. On the 6th day in ICU they then decided that
gradual wasn't working so they decided to induce a coma to stop
the seizure, am I wrong or is this an aggressive treatment that
should have been used to stop a 4 hour seizure, or something
similar could have been done maybe not to this extreme at an
earlier time.
Many hours later the doctors told us that the coma had become
to severe and her organs had started to shut down and they had
to bring her out of the coma ASAP. while bringing her out of
the coma they had to do hourly blood tests to monitor the situation,
as the hours passed by, her hemoglobin’s were so low that
she needed a blood transfusion or she would not make it though
the night, we agreed to the transfusion and were then told that
if she makes it through the night it would be a good sign and
if the need to resuscitate should arise do we want them to resuscitate
or let her go, in complete shock we said of coarse resuscitate.
This was the heaviest night of them all.
Well Melissa made it through the night, not that we could see
any difference but the doctors said she has allot better chance
of being ok now.
over the next couple of days we just sat with her holding her
hands and looking at all the drips tubes and old spots where
the vein had stopped providing the access needed, a total of
29 in her arms legs hands feet and neck.
It was like it was a wind down time, it wasn't but it was almost
like we knew it was time to accept the possibilities that before
we could not conceive. then unexpectedly the registrar kneeled
down behind us and said "we wont make that mistake again"
Please don't email and ask me how I didn't turn around and hit
him because I have no idea. all that could come out of my mouth
was , what’s that, he replied "transferring her out
of ICU to soon" I bit my tongue and said nothing.
Another eeg was done at this time and it showed massive swelling
so they did what they do and after a day or two we were transferred
out of the ICU down to a different ward and let me tell you this
is the day that nearly broke me, we got there and it was so noisy
and kids running around and it smelt like a 30 year old barn
yard, the windows were leaking fumes from the birds that perched
on the sills outside and the whole feeling in there was like
it was over, we have lost our angel as we knew her and they have
stuck us in the barnyard with allot of kids running around. It
didn't take long for me to stir up a transfer to another ward,
not to mention they only knew she had a seizure and didn't know
anything else. In the next ward it was better but still didn't
know much about her only about the seizure and at this stage
Melissa needed suction as she wasn't swallowing and had no gag
reflex, well this is were grandma jumped in and taught herself
how to do it really quick because when I asked at the nurses
counter they told me they don't have anyone on the ward that
can do it, anyone would have thought I had asked them to remove
an organ, and there’s grandma in there saving her life while
the ward takes over an hour to get someone to do it.
One
day in the ward Melissa's grandparents were sitting with her
and Melissa's Aunty Belinda was in visiting and when Belinda
was leaving Grandma asked a nurse to sit with her and asked her
to promise not to leave Melissa while they went out to see Belinda
off, then they would be right back. grandma had put pillows down
each side of the bed so if Melissa did wake up and start to move
around then she couldn't hurt herself, Melissa had no pillows
under her head as she was quite comfortable in that position
laying on her back. When grandma got back Melissa was face down
in to a U-pillow, grandma quickly turned Melissa over and picked
her up, Melissa's face was all motley blue coloured and she was
hardly breathing. Grandma was after blood, the nurse had laid
Melissa on her side and left her alone and Melissa had somehow
rolled on to her tummy and as she wasn't moving at this time
Melissa must have just rolled with gravity pulling her off balance.
it took about 5 minutes for someone to check Melissa properly
and by this time Melissa had gained colour again, grandma was
going off and they threatened to get security to remove her from
the hospital so grandma went and lodged a formal complaint that
lead to a meeting with the nurse crying and apologising, they
said that grandma should not have yelled at the nurse like she
did and grandma refused a return apology.
A few weeks later there was a press release on the radio from
that hospital stating it was very dangerous to use U-pillows
with babies, hmm don't know if it quite told the story but it
was a valid warning
Everyday
was a struggle with things like nurses and doctors washing their
hands before tending to Melissa and also nurses leaving fingernail
marks in her back, Melissa also had a drip that had a safety
line to fill to and one nurse filled the bottle which was 50%
more than the safety line so she didn't have to do it as often.
I asked a doctor about the lack of knowledge passed over to the
wards when coming from ICU and he said quietly "that’s
Normal".
Coming
to the end of our stay at this hospital we had another catscan
and the result was that Melissa had generalised severe brain
injury, the size of her brain had actually decreased from original
due to the amount of damage. We organised an appointment with
the Neuro to find out what to expect,, his words were "this
is Melissa now get used to it" we asked what recovery to
expect and also life span and he said "we don't expect any
recovery due to the amount of damage and expected her to live
maybe 2 or 3 years",, we were again in shock,,
As
soon as Melissa was stable enough for our local hospital to care
for her I insisted that she was transferred immediately, on the
last day at this hospital we met with different doctors that
had different stages of her care while in the hospital so we
could ask questions and see what we would have to watch out for
and basically how to care for her and maybe even find out what
went wrong and when we walked in they had their legal team there
to completely ruin the meeting with everything being said carefully
and also the legal team jumping in to answer many questions,
it was a complete waste of time for us when we really needed
some advice
our local hospital was great, we had many conversations with
the staff about what we had been through and they were shocked,
we spent a total of 3 months straight in hospital with Melissa
and it is something that we wouldn't wish on anyone, at Christmas
the local hospital moved a few patients around to enable our
entire family to have a complete section of the ward to ourselves
for Christmas day and we were able to close the doors and have
everyone together on that special day without Melissa missing
a thing. by this time she was awake more but eyes locking straight
up or to the side or just looking around with no sign of what
Melissa was seeing or hearing, almost like a coma with her eyes
open.
In
January Melissa went back to the bigger hospital to have a gastrostomy
and a nissens fundoplication, as this was a surgical procedure
I requested that they splint Melissa's arms just incase she started
to move around and grabbed the tube, I didn't expect it but I
am always trying to think ahead to prevent problems, and I also
spoke to the head of ICU and requested that she stay in there
for 3 days to make sure everything was good with the operation
and just to give us piece of mind. well the operation went well
until we got back to ICU, guess who was there,,,, the registrar,,
well the next day he bought his son in and he was running around
a little, (in ICU) I can't be wrong here he shouldn't have his
child in ICU running around, or was it to rub us up the wrong
way, then guess what,, yes he tried to get Melissa transferred
out of ICU after the first night, well we won that one Melissa
stayed the 3 days.
After
we were home with Melissa, I think it could have been somewhere
close to 12 months we decided to look in to the possibilities
of suing the hospital. Unfortunately our case was driven in to
the ground. We got a solicitor and we basically needed a pediatric
neurologist to back our claims of neglect and we were sent to
one to get a report and when I read his report I was stunned
to find that he had very obviously not taken any notice in what
I had told him and went strictly on the information in the medical
notes.
I thought well that’s just not right so I did a report on
his report and pointed out everything I had told him and also
the parts in the medical records that backed up our claim, he
wrote another letter stating that he would not change his report.
I later found out that he was a, or the leading pediatric neurologist
for the medical boards defence, any further reports had to be
accompanied by his report, that made it very difficult with his
high standing in the medical community.
In a later conversation with the solicitor he mentioned how these
cases worked and how difficult they are to get anywhere and he
knew this from when he was on the medical board. This didn’t
click to me for a year or two and now I guess I realize that
our case may have been railroaded in to the ground from day one.
This deeply saddens me and I wonder how it can all work with
so much corruption in the system, I didn’t want to get rich
I just wanted to get something set up so one we could care for
Melissa and her needs, as the system doesn’t cover everything
and as time goes on it just gets more difficult, secondly I would
have liked to create some kind of impact to the hospital insurance
and therefore applying pressure from the insurance company to
the hospital to improve the standards that failed Melissa and
the care that she should have got. We still have plenty of time
yet but I have lost interest in the battle and have just been
getting on with life and ensuring that Melissa had the best possible
that we can provide and all the attention and love that we can
give her
In
just a couple of weeks, Melissa went from an above average mentally
well adjusted very happy and active little girl to being only
able to sleep and stare in one direction. We could not accept
this when we were told and thought Melissa was expected to have
a full independent life and the main possibility was she may
have learning difficulties, slow right down or stop learning
in the future. We were not concerned as we knew even if she stopped
learning, she already could talk , walk , eat , drink and go
to toilet by herself etc. This was not supposed to happen.
Melissa
is totally dependant on us 24 hours of the day and we now watch
her every minute, day and night. She now has Cerebral Palsy and
feeds through a tube, directly into her tummy with a gravity
feed line and bottle, as oral feeding is not possible. Melissa
also had to have a gastrostomy because the dieticians at the
larger hospital were trying to feed her a quantity recommended
in a book, they didn't listen to us when we said she didn't eat
that much before the brain injury and now with her not being
active they were over feeding her to the point of dry reaching
and bringing up her feed. It is one of the hardest things when
they don't listen, you know what they are doing is wrong and
they go ahead and fix it in their way instead of considering
that hmmm could the parents be right. I have included information
about gastrostomy and the Nissens Fundoplication on this site,
when you see what they had to do just think if you feed someone
less and it stops them from being sick, would that be worth a
try first. Melissa unfortunately did need the Gastrostomy but
possibly not the Nissens, it would have been nice to try feeding
her less first.
Check
back from time to time as I plan to have a short story from Emily
and Matthew on their feelings and a bit of a description of their
experience going through this with their sister Melissa and what
it was like for them growing up in our family constantly making
decissions based around Melissa's care.
UPDATE
26th MAY 1999
Melissa
is now 5 years old and she IS still fighting hard for her own
recovery with our help. It's a slow and long road to travel but
well worth it. Melissa now smiles and giggles, she is aware of
us and she is trying hard to talk. her emotions are showing again
and she communicates in her way and we are happy to say that
we have picked up muffled words like Daaad, Muummm, hungy (hungry)
Yeahh (yes) and a few others, She nods yes and shakes her head
no and sure gets us to understand her now. She brings us so much
joy , she will never give up and nor will we. Her mind is starting
to work well but her body is not yet, although, she can now wipe
her eyes when she is tired and suck her fingers all the time
which is becoming a problem for us to solve, she also scratches
her head and plays with her hair, and loves her play time. We
will never give up hope. If you have any questions we would be
glad to answer them as best we can and would love to hear from
you.
Melissa's 11th Birthday
UPDATE
4th March 2007
Well
Melissa will be 13 in May and sadly there has been very little
change from her 5 year old update above, but this is also a good
thing as Melissa is very very happy and healthy. Melissa rarely
says anything like we began to see but the occassional muuuum
pops out (U.S. translation moooom) haha sorry.
UPDATE
17th January 2008
Melissa
is still very happy and healthy, unfortunatly Melissa has been
having a form of stare seizure and when she does she drops her
head and faces to the left and her right arm flings out to the
right, her body tenses up and it lasts for about 10 seconds to
maybe a minute and then its the tired session afterwards, they
don't seem to hurt her or have any ill effect but they are just
not to nice to see, I would like to get one on video but when
they start the last thing we think of is the camera, we just
want to comfort her.
UPDATE
20th July 2009
Melissa
has been going well, pretty healthy and very happy,
Unfortunately Melissa has quite a bit of cuviture
of the spine, we have an appointment later this
week and I am praying with every bone in my body
that Melissa doesn't have to have the metal rods
inserted in to her back, I am not sure how I would
get through having to watch her go through such
an ordeal. How traumatic would that be for our little
angel, I know how much she can fight and I know
she can get through it but to me the pain of putting
her through that would be so much worse to me than
the initial brain injury.
But
anyway, Melissa is so beautiful and so happy, what
can I say, Melissa is absolutely loving going to
school and watching everyone she is very nosey and
likes to see what everyone is doing. Her absolute
favorite past times are watching tv holding our
hands and playing and also driving around in the
van
Update 25th April 2013
Melissa is 18 yrs old and about to turn 19 next month, Melissa is still going to school and loving it more than ever, but we were told that this is her last year so we have to talk to the school about that and see if we can get another year, Melissa is responding extra well with her current teacher.
We are still having to watch the spine curvature and it is extremely close to having to have something done about it and just the though makes us feel sick to know what she will have to go through, we do know she would look a lot better with it done and most likely more comfortable once all the healing is complete but it is getting to that point that is horrifying, it would be major surgery on her back and that's she sleeps and sits all the time. Melissa is still not talking apart from the odd word here and there but often responds with a nod or a short and rapid head shake with her chin down to her chest for a no, what looks like a no to most people is an excited yes.
Melissa has remained healthy since the previous update many years ago with maybe a few colds and that's about it, her weight is maintaining and we recently found out her bones density is not what it should be but maybe that's a normal scale for kids running around, we are waiting to hear back about it if they want to do some sort of infusion to increase bone density. Turning 18 we now loose someone that as given us much comfort and support, the most important person in Melissa's medical team Dr Smily, he has been like Melissa's Archangel of the real world and we would like to give him the biggest thank you of all, he will be missed but we will try to keep in contact from time to time. Melissa has also lost the comfort of the Variety Club but we understand they are a childrens charity and they have to have a line drawn somewhere and we can only thank them for all their support over the last 16 years. Novita (Crippled Childrens Assoc.) have also been left behind and we also thank them for all their support, but thankfully the new department Melissa entered in to have also been great Disability S.A.
Our looming battle is with adjusting to the next stage after Melissa does finish school, there are a number of houses around that do provide care through the school hours but being extremely fussy and paranoid parents about her care we now have to somehow find a middle ground between their rules and ours and I think the main one will be Melissa gets there when she is ready because if she is sleeping I let her sleep because she needs it, what a princess haha. we are also fussy about who takes her out and who is driving, who is caring for her obviously, who changes her and how, I am so fussy that her nappy is right and its surprising how many people can't put a nappy on to a satisfactory standard.
Well from here on all we can hope for is clear sailing but we know there will always be rough times but that's life, our big fear now is when we are no longer capable to care for her how things will be and that's a heart breaking realisation to go through and all we can do is just put it off till another day to worry about.
I need to upgrade the whole picture page and how it is laid out but for now here is a picture of Melissa 2012
Also one with Dr Smily on her last visit
Melissa was being her usual I can't do as I'm told attitude when seeing a Dr so Dr Smily helped her look towards the camera.
Advise
From Our Experience
To learn anything
and everything possible about TS or what ever the problem.
When in Hospitals,
if you know things are not going as they should, stand your ground
and make sure you are heard, because they have many lives in
their hands when they treat 1 person (mothers , fathers, brothers,
sisters, grandparents and the rest of the family)
AND NEVER
GIVE UP HOPE
Take Plenty of
photos of your children and give them lots of hugs and kisses
and a lot of LOVE.
Treasure
every moment.
HAVE
A GOOD DAY.
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